Hypermobility Syndrome, AKA Joint Hypermobility Syndrome (JHS), Ehlers-Danlos Syndrome Hypermobility Type (EDS-HT), Hypermobility Spectrum Disorders (HSD)

March 11, 2018

Chronic Pain India - A new initiative

There is a new initiative by chronic pain warriors in India which is an ambitious project to build a community of support and a platform for awareness and advocacy for people suffering from chronic pain  and invisible illnesses in India.

March 10, 2018

Where do missing zebras go?


After I got my diagnosis, I researched online about hypermobility disorders and a good deal of useful information I found was on the blogs of fellow zebras. As you read someone's blog, sometimes from years ago, and follow their story - how they were diagnosed and their journey afterwards, you get entwined with the journey at some level. You hope the best for them, you root for them. You cry for the pain they faced and find support in their trials and tribulations. You understand their views and value their insights. And then the blog ends suddenly. The last post was some years or some months ago. 

April 11, 2017

The Unending Moment of Torment

Chronic pain at its peak was like an unrelenting hollowness, a continuous  deafening hum, an endless torture session where every moment felt like dying but death never came. Though these lines by Gulzar allude to a different context, I often found them ringing in my head when I was submerged and drowning in pain. 

March 23, 2017

New Updates on HSD, JHS, and h-EDS (2017)

The new definitions, terminology and criteria for a better understanding of joint hypermobility disorders are here (2017). All the relevant links to articles in the Ehlers-Danlos Society website can be seen in one place: click here

What is HSD?

February 22, 2017

Exercising in hEDS

An excellent talk I highly recommend - I found it very helpful. Watch it full-screen, I am sure if you are new to this new to this condition and are watching it for the first time, you will want to take notes! 

February 21, 2017

Some old talks on EDS/hEDS

New changes are happening in the diagnostic criteria of EDS, hEDS and hypermobility spectrum disorders. I would like to share some old talks again that are extremely informative and must-watch for anyone wanting to know about these  conditions. 

February 15, 2017

Important Information

Feb 2017

Many changes are taking place that are going to lead to changes in the terminology associated with hypermobility related diseases. The future posts in this blog will reflect that, and where I can, I will edit/delete past posts to reflect that updates for the reader. However, I am waiting to fully understand these changes, and the updated diagnostic criteria on EDS that will be published in March 2017. I am also inclined to keep those pages (with an update line on top)  as a reminder of how confusing the things were - that is hoping things will be less confusing in the future.