Hypermobility Syndrome, AKA Joint Hypermobility Syndrome (JHS), Ehlers-Danlos Syndrome Hypermobility Type (EDS-HT), Hypermobility Spectrum Disorders (HSD)

March 12, 2016

Link: Chronic Pain, Cancelled Plans and Friends

Every chronically ill person, especially young people, regularly faces situations where they have to say no to many plans, turn up late for things and cancel on others at the last moment. They regularly face the unpleasant prospect of having to explain these with truths, half-truths and lies, depending on the friend's closeness, receptiveness and capacity to understand the situation. They also lose friends and are often considered weird, especially so if the illness is invisible. This particular aspect among other problems related to social life causes a lot of distress because we also feel disappointed with ourselves, we feel bad for letting down/ annoying others, we feel bad for being misunderstood and we feel lonely.

This is a short article on how friends can show their support and understanding to a chronically ill person when they cancel plans.