Hypermobility Syndrome, AKA Joint Hypermobility Syndrome (JHS), Ehlers-Danlos Syndrome Hypermobility Type (EDS-HT), Hypermobility Spectrum Disorders (HSD)

June 24, 2015

Why doctors may not help you (and what you can do about it)

This talk by Dr. Heidi Collins is very popular in EDS and hypermobility forums. The term "zebra" is a slang for a surprising or rare diagnosis, and alludes to the quote:
"When you hear hoofbeats, think of horses, not zebras” 
The saying means that a doctor should look for the expected and common causes first, rather than the exotic ones. Doctors often do not know about JHS, which is not at all mentioned in the MBBS level textbooks. Some of the specialist doctors (Orthopedists, even rheumatologists) may know about it but do not believe in it being a serious enough or common condition. Many orthopedists and rheumatologists are not familiar with the recent updates on connective tissue disorders.
Hence the "zebra".

The ignorance about JHS is the greatest hindrance in people having it getting better help. And therefore, it is important for each of us to educate ourselves about this condition and spread the awareness.

[Dr. Heidi Collins has hypermobility herself and is actively involved in treating JHS/H-EDS patients at South Bend, USA]